Supportive care helps people meet the physical, practical, emotional and spiritual challenges of leukemia. It is an important part of cancer care. There are many programs and services available to help meet the needs and improve the quality of life of people living with cancer and their loved ones, especially after treatment has ended.
Recovering from leukemia and adjusting to life after treatment is different for each person, depending on the extent of the disease, the type of treatment and many other factors. The end of cancer treatment may bring mixed emotions. Even though treatment has ended, there may be other issues to deal with, such as coping with long-term side effects. A person who has been treated for leukemia may have the following concerns.
Fatigue
Fatigue is a symptom of having a low red blood cell count (anemia). Anemia can occur when the bone marrow doesn't function well as a result of the disease or chemotherapy treatment. Blood transfusions may be given to treat the anemia.
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Infection
Infection can develop because of a low white blood cell count (neutropenia). Neutropenia happens when the bone marrow doesn't function well as a result of the disease or chemotherapy treatment. Antibiotics and antifungal medications are used to treat infection in people with leukemia.
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Abnormal bleeding
Abnormal bleeding can occur because of a low platelet count (thrombocytopenia). Thrombocytopenia happens when the bone marrow doesn't function well as a result of the disease or chemotherapy treatment. Platelet transfusions may be given to slow bleeding or reduce the amount of the bleeding.
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Loss of appetite
A loss of appetite is common in people with leukemia. Loss of appetite may be related to the leukemia itself, treatments, fatigue or depression.
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Emotional health
Emotions may be overwhelming during treatment and once treatment ends.
During treatment, the focus is getting through treatment.
- Treatment takes a long time and it may be difficult to stay positive.
- Finances and other family issues may be a concern.
When treatment is finished, people may have other thoughts and unexpected feelings, including:
- thinking of the effects of the cancer on the family, friends and career
- questioning self-worth, identity and changes in appearance
- adapting to lifestyle changes
- concern that the cancer will come back
- less contact with the healthcare team can be a source of anxiety
People cope with cancer in different ways.
- Physical activities appropriate for the individual and good nutrition are important factors in improving emotional well-being.
- It is important to balance being active with rest.
- Open and honest communication about fears and concerns can be helpful.
Treatment for emotional distress may include counselling and medications.
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See a list of questions to ask your doctor about supportive care after treatment.