Follow-up after treatment is an important part of cancer care. Follow-up for childhood leukemia is often shared among doctors and other healthcare professionals, including hearing specialists (called audiologists), speech-language pathologists, dentists, eye doctors, nurses and psychologists. Your child’s healthcare team will work with you to decide on follow-up care to meet your child’s needs.
Long-term follow-up is important because there is a chance that cancer can come back, or recur. Late side effects from treatment can also develop. People who had cancer as a child are usually followed in aftercare programs for life.
The Children’s Oncology Group (COG) provides long-term follow-up guidelines for childhood cancer survivors. Some centres across Canada have transition clinics set up to follow the survivors of childhood cancer. Transition clinics help to prepare the survivor who is reaching early adulthood to successfully manage in the world of adult healthcare. Find out more about the Children’s Oncology Group long-term follow-up guidelines.
Follow-up after treatment for childhood leukemia includes watching for signs of:
Don’t wait until the next scheduled appointment to report any new symptoms or symptoms that don’t go away. Tell the healthcare team if your child has:
The chance of leukemia recurring is greatest within the first few years after treatment has ended, so close follow-up is needed during this time. ALL most commonly recurs in the first 2 years after treatment. AML most commonly recurs 1–4 years after treatment.
Follow-up after childhood leukemia treatment varies. Follow-up visits are usually scheduled:
During a follow-up visit, the doctor usually asks questions about the side effects of treatment and how the child is coping. The doctor may do a complete physical examination, including:
Follow-up generally involves a number of tests to check the effects of the cancer, the child’s response to treatment and the child’s progress. A child who is part of a clinical trial will be followed according to the guidelines in the protocol. Tests are often part of follow-up care. Your child may have:
If a recurrence is found during follow-up, the oncology team will assess the child to determine the best treatment options.
Find out more about these tests and procedures.
To make the decisions that are right for your child, ask the healthcare team questions about follow-up.